#80 Living with Neurofibromatosis Type 1 with Amit Ghose

Join us on a remarkable journey as we delve into the inspiring life of Amit Ghose, a courageous individual who has faced the challenges of living with neurofibromatosis type 1 (NF1) head-on. In this podcast, Amit shares his experiences, from growing up with this rare condition that only affects 1 in 3000 people, to the hurdles he encountered during his school years, including the painful struggle of not being accepted and the heart-wrenching experiences of bullying. Discover how cricket became his refuge, transforming his life and instilling in him the resilience to face adversity. At just 11 years old, Amit faced a life-altering moment when a tumour led to the removal of his eye. We explore the profound impact this had on his life, the challenges he encountered, and the incredible strength it took to navigate this new reality. But Amit's story takes a heartwarming turn when he opens up about finding love. His journey of acceptance and self-love is nothing short of remarkable and a testament to the power of his human spirit. Today, Amit dedicates his life to spreading awareness about NF1, using his voice to make a difference in others facing similar challenges. Through his story, we learn about the importance of acceptance, building confidence, and the transformative power of love. Join us in this extraordinary conversation as Amit shares his experiences, triumphs, and mission to create a world where awareness and understanding of NF1 shine brightly. What is neurofibromatosis type 1 👉 Amits Socials Instagram 👉 https://www.instagram.com/amitghosenf1/ Tik Tok 👉 https://www.tiktok.com/@amitghosenf1?is_from_webapp=1&sender_device=pc Danny's Social Instagram 👉 https://www.instagram.com/thedanielleesepodcastofficial/ TikTok 👉 https://www.tiktok.com/@thedanielleesepodcast?is_from_webapp=1&sender_device=pc Facebook 👉 https://www.facebook.com/thedanielleesepodcast/ Stream the episode on and follow us on Youtube 👉https://www.youtube.com/channel/UC6YVYEEZleKQYyqhrlJo0xA Spotify 👉https://open.spotify.com/show/1N72EhY50LRpwMgpLCPUse?si=e2c6ca7d727f4d4f Apple Podcast 👉 https://podcasts.apple.com/us/podcast/the-daniel-leese-podcast/id1549263409 Soundcloud 👉 https://soundcloud.com/thedanielleesepodcast